Life Is Beautiful With A Prosthetic Eye!

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This story I was so eager to share with everyone! I Have been following this momma for a couple months through my blogging groups, and she really inspired me. I thought my life as a mom was hard since I have been doing it all alone since before I had my son, but this mom.. this mom truly knows the struggle. After reading her blog posts, following her social media, and now truly understanding her story, I had to share it with you! I wanted to inspire you and let you know that everything will be okay. This mom and her family prove that even when you think the worst your life could be, beautiful things will still happen, and everything will be okay. I am truly honored to have been able to have this guest post on my site. Now you will read the struggles of having a daughter that had to have a  prosthetic eye within 27 hours of being born.

Life Is Beautiful

Life is beautiful. It may be crazy, stressful, and exhausting… but it is still beautiful. I have people question how I can be so optimistic? I don’t understand why they are not! Yes, I may have some different challenges in life but I believe that it is all about how you approach those challenges. When I look at my whole picture, I have a beautiful family, with 2 amazing daughters, and a husband who is an awesome partner. However, as optimistic as I am, I am not here to go on about how life is amazing. I am going to share my story of how I got here.

At the age of 33, I thought that I would never get pregnant. We had actually begun discussing adoption since we were apparently having issues getting pregnant. We had not been trying for a full year so we could not see a doctor regarding infertility. Finally, it happened! I was pregnant with my first bio child. We would be able to give our oldest a sibling and grow our family. Pregnancy was not a piece of cake. I am a miserable pregnant woman. I also had gestational diabetes and was on bed rest for five weeks. Five long, slow, never-ending weeks. Scarlett tried to make her appearance at 32 weeks, but we were able to persuade her to hang out until almost 37 with some medication to keep the contractions at bay.
Despite being totally uncomfortable, childbirth was beautiful. When they laid her on my chest, it was love at first sight. However, after our kangaroo care was over, they gave her a bath, handed her back to me, and both of us noticed her right eye looked off.

Now, I am not going to go into all the details, but Scarlett ended up in the NICU with pulmonary hypertension at 27 hours old and stayed in the NICU for 6 days. By the time she graduated from the NICU at one week old, we had a diagnosis for her right eye. Even with everything else going on, we persisted in asking about her eye and why she was not opening it. We were repeatedly told that it was “birth trauma.” Long story a little shorter, Scarlett was diagnosed with three congenital eye conditions: Persistent Fetal Vasculature, Microphthalmia, and a Cataract. Big words I know! I had to google two of the three to see exactly what they were. Basically, she has an eye that did not fully develop in the womb, it is also very small (it will not get any bigger than it currently is), and because of these conditions, she is blind in her right eye and will require a prosthetic eye.

Most people would be sad, worried, and even terrified at the prospect of their child having to have a prosthetic of any kind. We were scared. We had no clue what process we were going to have to go through or how it would affect her life. After I went into full-on Nerd Mom mode, reading everything I could about her conditions and after she got her first clear prosthetic… it had become my new normal.

Our new normal.

We are a family of four. So not only did my husband and I have to learn all about her condition. We also had to find a way to explain it to our 10-year-old so she would understand. Once all that was accomplished, we learned where our biggest battle would be. It is most likely not what you would think… I mean taking a prosthetic eye out and putting it back in a wiggly baby is hard, but fighting your insurance company is harder.

As of today, we have fought the first battle in getting better coverage for her clear prosthetics. After our insurance company deemed them not medically necessary, we appealed of course. These clear prosthetics that she had to get every four to five weeks, not only helped her eyelids grow and are functional but they also helped her eye orbits grow. See, if your eye orbit doesn’t grow, then your face becomes asymmetrical. We filed appeals, submitted letters from her doctors, and filed second appeals. We also made phone calls and finally, after a few months, we won. Before we won, they were paying less than our state’s Medicaid coverage for the procedure but we got them to up what they would cover. This brings us to where we are now. The battle we are gearing up for. Her painted prosthetic eye (the one that looks like her other eye) will be deemed cosmetic. So, we are expecting it already and gearing up for battle number two. It’s going to be harder this time. This procedure is much more expensive.

This fight is going to be the hardest one yet.

Harder than everything that has come before, from bed rest through her first clear prosthetic.

Yet, we will not give up.

Despite all of that, life is beautiful. You have to look at your journey as a whole and realize that the things that stress you out today… may make you look back and laugh at yourself in a few years. I know that I have had a chuckle over a few things that have happened since Scarlett’s birth. I choose to stay positive. Well, I try to. I am only human and we all have bad days. When you come across a challenge in your life that you think will break you, stop and take a breath. Remember, life is beautiful and you will find your way through.

 

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Bio: 

Raina is a wife and mom to 2 wonderful, sassy girls in Southern Indiana. When not crocheting or sewing, she can be found in the kitchen. She dreams of being a homemaker, but, until that day comes, she works in the finance industry. For more information on Raina, you can find her on her blogs at www.eye-see-scarlett.com and www.pfvkidsblog.com
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Written by y5zqw

Hello there, I’m Veronica! I run BossPrincess101 for young souls to be inspired by my parenting skills, my techniques with life, DIY projects, the delicious recipes I make for my family, and I love sharing my favorite products with others! I have been a multi-influencer for about 4 years. The past few months I have also really dedicated myself to helping businesses. My goal is to help people build better, not bigger, businesses at the end of each day.

6 Comments

  1. Wow what an inspiring story !! And I also was a miserable pregnant women lol
    I love the name Scarlett !

  2. I had preemie babies who spent time in Nicu that is a hard spot to be. I can’t imagine what you were feeling waiting to find knowledge on how to help your sweet baby. I am glad you now have those 3 scary words to gain understanding. I am so sorry your daughter will never see from her right eye but what she will see through the other will be even brighter! She is so lucky to have such a strong momma like you. Your doing an amazing job. I am so glad that you shared your story with us!

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